Statement on the Introduction of the Medical Nutrition Equity Act


WASHINGTON, June 10, 2021 /PRNewswire/ — Patients and Providers for Medical Nutrition Equity (PPMNE), a nationwide coalition of greater than 40 supplier and affected person organizations, applauds the bipartisan and bicameral re-introduction of the Medical Diet Fairness Act of 2021.

1000’s of youngsters and adults in the US have a analysis of a digestive or inherited metabolic dysfunction that stops their our bodies from digesting or metabolizing meals. Medically crucial vitamin is their situation’s remedy. Too usually, insurance coverage corporations deny these sufferers entry to medical vitamin for the remedy and administration of their illnesses placing them liable to medical issues. Specialised medically crucial vitamin is their standard-of-care remedy.

Medically crucial vitamin is routinely denied by insurance coverage corporations, whereas extra expensive remedies are accredited. When an insurance coverage firm does cowl a medically crucial method, it usually comes with the stipulation that the method be administered by a nasogastric or gastrostomy tube.

“Medically crucial vitamin is a risk-free, cost-effective remedy pathway for pediatric sufferers with issues of the gastrointestinal system and generally the one mechanism for guaranteeing these kids can obtain illness remission and crucial vitamin necessities for optimum development and growth,” stated Ben Gold, MD, President of the North American Society for Pediatric Gastroenterology, Hepatology and Diet. “Medically crucial vitamin is, by definition, medically crucial and insurance coverage insurance policies have to mirror that.”

Many states require protection of medical vitamin, however protection is extremely variable. The Medical Diet Fairness Act would require protection of medically crucial vitamin below Medicaid, the Kids’s Well being Insurance coverage Program, Medicare, the Federal Worker Well being Profit Program, and personal insurance coverage for outlined gastrointestinal and metabolic issues.

“At present, protection for medically crucial vitamin depends in your age, gender and the state during which you reside. This invoice would shut protection gaps and guarantee any child born in the US and recognized with an inborn error of metabolism could have entry to the required remedy wanted to guide a heathy life,” stated Christine Brown, Govt Director of the Nationwide PKU Alliance.

“For a lot of sufferers residing with a uncommon illness, medical vitamin is their solely viable remedy possibility, and it must be lined as every other crucial remedy. With out enough protection, sufferers and their households may face troublesome monetary decisions that might result in worsening well being outcomes if they don’t have their wanted medical vitamin,” stated Peter L. Saltonstall, President and CEO of the Nationwide Group for Uncommon Issues.

PPMNE thanks Senators Bob Casey (D-PA) and Joni Ernst (R-IA) and Representatives Jim McGovern (D-MA) and Jaime Herrera Beutler (R-WA) for his or her important management on this vital challenge. Advocates throughout the nation will take part within the #SpeakUp4MNEA advocacy marketing campaign the week of June 14 to extend consciousness in regards to the want for passage of this laws. 

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Contact: Megan Gordon Don

SOURCE Sufferers and Suppliers for Medical Diet Fairness

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